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SAMPLE LETTER TO US SENATORS AND
REPRESENTATIVES
Your name and address here
The Honorable Senator (fill in your state's US senators' names)
United States Senate
Washington DC 20510
--OR--
Representative (fill in your US representative's name)
US House of Representatives
Washington, DC 20515
Subject: Notifying US Medical Community
about Morgellons disease
Importance: Urgent
Dear:
As you may be aware, the Centers for Disease Control and Prevention (CDC) is
currently investigating an unexplained and debilitating condition that has
emerged as a public health concern. This condition, which is referred
to as "Morgellons disease" or "Unexplained Dermopathy"
involves highly unusual skin and other symptoms which cause an immense amount of
suffering for the families who are affected. The disease has received
a great deal of attention from Congress with more than 40 members of
Congress contacting the CDC by letter, telephone, or in person, to ask the
agency to expedite this important public health investigation. The CDC
epidemiological investigation of Morgellons disease is now underway in Northern
California and is expected to take 12 months or longer to complete.
In the meantime, many clinicians and public health agencies in the U.S. are
still unaware of the CDC investigation and the symptoms of this devastating
illness. The Morgellons Research Foundation, a nonprofit
organization which has been accepting registration information from patients
with the illness since 2002, has received registrations from nearly 700 families
affected by this illness since the CDC announced the start of their
investigation in the popular press one month ago. The majority of
these affected families report that their physicians were unaware of the CDC
investigation and symptoms of the illness. Many physicians still
assume the patient is exhibiting symptoms of a psychosomatic illness when they
describe the skin and other physical symptoms of Morgellons disease. Unless
clinicians happen to see a news report in the popular press, they would probably
not be aware of the CDC investigation.
I feel that now is the appropriate time for the CDC to notify both the U.S. medical and public health communities about the Morgellons disease investigation and symptoms of the illness.
Although I realize that the CDC investigation is just beginning and there are no results to report, I feel it will benefit the medical and public health communities to be informed about this investigation. I feel that it will benefit all U.S. Citizens if their medical providers are immediately made aware of the symptoms of Morgellons disease. Therefore I am asking you to contact the CDC and ask them to quickly and methodically alert the medical and public health communities about their investigation of Morgellons disease and symptoms of the illness.
Please ask the CDC to describe the disease to these medical and public
health communities precisely as they did in the following 2007 CDC document.
An important excerpt of this CDC document follows:
"Morgellons is an unexplained and
debilitating condition that has emerged as a public health concern. Recently,
the Centers for Disease Control and Prevention (CDC) has received an increased
number of inquiries from the public, health care providers, public health
officials, Congress, and the media regarding this condition. Persons who suffer
from this condition report a range of coetaneous symptoms including crawling,
biting and stinging sensations; granules, threads or black speck-like materials
on or beneath the skin; and/or skin lesions (e.g., rashes or sores) and some
sufferers also report systemic manifestations such as fatigue, mental confusion,
short term memory loss, joint pain, and changes in vision."
Please review the full 2007 document, which gives additional details on the CDC Morgellons Investigation.
Full CDC Document: http://www.morgellons.org/RFQ.htm
Please contact me as soon as possible to tell me
how you will address my concerns.
Sincerely,
Your constituent