Morgellons Research Foundation Action Alert:

Please send the following letter to members of Congress.  Please ask everyone you know to do the same.

The fastest way to send the following letter to Congress is via FAX.  Postal mail is also effective, but is a much slower process due to government mail screening. We do not recommend email, since your signature is important. 
Your representatives' contact information can be found at:
 www.senate.gov  
 www.house.gov
 
(SAMPLE LETTER TO US SENATORS AND REPRESENTATIVES)

Your name and address here:

The Honorable Senator (fill in your state's US senators' names)
United States Senate
Washington DC 20510

--OR--
 
Representative  (fill in your US representative's name)
US House of Representatives
Washington, DC 20515
 
Subject:       Notifying US Medical Community about Morgellons disease
Importance:  Urgent

Dear:
 
As you may be aware, the Centers for Disease Control and Prevention (CDC) is currently investigating an unexplained and debilitating condition that has emerged as a public health concern.  This condition, which is referred to as "Morgellons disease" or "Unexplained Dermopathy" involves highly unusual skin and other symptoms which cause an immense amount of suffering for the families who are affected.  The disease has received a great deal of attention from Congress with more than 40 members of Congress contacting the CDC by letter, telephone, or in person, to ask the agency to expedite this important public health investigation.  The CDC epidemiological investigation of Morgellons disease is now underway in Northern California and is expected to take 12 months or longer to complete.
 
In the meantime, many clinicians and public health agencies in the U.S. are still unaware of the CDC investigation and the symptoms of this devastating illness.   The Morgellons Research Foundation, a nonprofit organization which has been accepting registration information from patients with the illness since 2002, has received registrations from nearly 700 families affected by this illness since the CDC announced the start of their investigation in the popular press one month ago.  The majority of these affected families report that their physicians were unaware of the CDC investigation and symptoms of the illness.  Many physicians still assume the patient is exhibiting symptoms of a psychosomatic illness when they describe the skin and other physical symptoms of Morgellons disease. Unless clinicians happen to see a news report in the popular press, they would probably not be aware of the CDC investigation.  

I feel that now is the appropriate time for the CDC to notify both the U.S. medical and public health communities about the Morgellons disease investigation and symptoms of the illness.   

Although I realize that the CDC investigation is just beginning and there are no results to report, I feel it will benefit the medical and public health communities to be informed about this investigation.  I feel that it will benefit all U.S. Citizens if their medical providers are immediately made aware of the symptoms of Morgellons disease. Therefore I am asking you to contact the CDC and ask them to quickly and methodically alert the medical and public health communities about their investigation of Morgellons disease and symptoms of the illness.

Please ask the CDC to describe the disease to these medical and public health communities precisely as they did in the following 2007 CDC document.  An important excerpt of this CDC document follows:

"Morgellons is an unexplained and debilitating condition that has emerged as a public health concern. Recently, the Centers for Disease Control and Prevention (CDC) has received an increased number of inquiries from the public, health care providers, public health officials, Congress, and the media regarding this condition. Persons who suffer from this condition report a range of coetaneous symptoms including crawling, biting and stinging sensations; granules, threads or black speck-like materials on or beneath the skin; and/or skin lesions (e.g., rashes or sores) and some sufferers also report systemic manifestations such as fatigue, mental confusion, short term memory loss, joint pain, and changes in vision." 
 

Please review the full 2007 document, which gives additional details on the CDC Morgellons Investigation.

Full CDC Document:    www.Morgellons.org/RFQ.htm

Please contact me as soon as possible to tell me how you will address my concerns.
 
Sincerely,

Your Constituent